Events & Trainings
EVENTS
Let Your Story Advocate for You!
Are you interested in having input in spaces where laws are made? Are you curious about how laws are made? If so, this workshop is for you. In our workshop, we will discuss the law-making process, why it is important to advocate in government spaces, and how to talk to the people who make the laws. This workshop will include information specific to NY state and will include opportunities for individuals to practice speaking up to advocate for the protection of their rights. This workshop is for self-advocates (those with a disability) as well as family caregivers.
Unique Approaches to Advocacy
What do you think of when you hear the word advocacy? Most people think about protests, rallies, or talking with lawmakers. Advocacy means speaking up for yourself and others and making people aware of your needs. In this workshop, participants will be introduced to self-advocates and family caregivers who have some unique approaches to advocacy. We will give participants opportunities to reflect on their own skills, interests, and networks to brainstorm their own ideas about unique ways to approach their future advocacy.
School Advocacy
New York families are protected by three layers of law, IDEA (guaranteeing a Free Appropriate Public Education through an IEP), Section 504 (a civil rights law providing accommodations for students who don't qualify for an IEP), and New York's own Article 89/Part 200 regulations, which set state timelines and define the Committee on Special Education (CSE). Every family has core rights: to request an evaluation in writing, receive a Procedural Safeguards Notice, participate in every meeting with anyone they choose present, review records, dispute IEP decisions in writing, and request an Independent Educational Evaluation at district expense. The process itself runs on a clear timeline, referral, written consent, a 60-school-day window to evaluate and hold a CSE meeting, IEP implementation, annual review, and reevaluation at least every three years, and a strong IEP should have specific present levels, measurable goals, exact service frequencies, and clear accommodations. Advocacy skill-building starts with the student: self-advocacy means knowing your needs and being able to state them, built through self-knowledge, rights awareness, communication, and follow-through, practiced through tools like an "elevator pitch" and situation-specific scripts. For parents, advocacy means showing up as an equal team member rather than a guest, preparing before meetings (reviewing drafts, writing down top concerns and asks), speaking up during them, and following up after (email summaries, dated records, tracking whether services are actually delivered). Across both, the goal is the same: turning knowledge of rights into confidence to use them.
PROVIDER LUNCH & LEARN: THE 5 THINGS SERIES - Virtual
PROVIDER LUNCH & LEARN: THE 5 THINGS SERIES
October 9 | 12:00–1:00 PM
5 Things to Know About Family Peer Advocacy
October 23 | 12:00–1:00 PM
5 Self-Care Strategies to Prevent Burnout
November 6 | 12:00–1:00 PM
5 Strength-Based Ways to Build Trust With Families
Come for one or join us for all five. You only need to register once for the whole series:
https://us02web.zoom.us/meeting/register/tjvrIJMcTByr8-QbUprcnQ#/registration
All sessions are FREE, VIRTUAL, and open to providers working with children, youth, and families.
We’d really love to build a strong statewide group for this series, so please join us and help us spread the word. Share the flyer and registration link with your teams, colleagues, provider networks, and anyone else who could benefit.
The flyer is attached in PDF and PNG formats for easy sharing.
Bring your lunch. Bring your perspective. We hope you’ll be part of it.
Panel Discussion - Aging
Capital Region
Thursday, October 8, 2026
10 a.m. to 2 p.m.
DoubleTree by Hilton Schenectady, 100 Nott Terrace, Schenectady, NY 12308
Panel discussion on aging at 11 a.m.
Screening of Unseen at 1 p.m.
How a Bill Becomes a Law/ Advocating in Albany (Copy)
Are you interested in having input in spaces where laws are made? Are you curious about how laws are made? If so, this workshop is for you. In our workshop, we will discuss the law-making process, why it is important to advocate in government spaces, and how to talk to the people who make the laws. This workshop will include information specific to NY state and will include opportunities for individuals to practice speaking up to advocate for the protection of their rights. This workshop is for self-advocates (those with a disability) as well as family caregivers.
Disability Rights 101
Disability Rights are Human Rights! Disability rights are an important part of our country’s civil rights history. Join us to learn about some of the laws and Supreme Court decisions that protect Americans with disabilities from discrimination and help ensure their right to live full and fulfilling lives. We will cover a brief overview of the Americans with Disabilities Act, laws that impact education (Section 504 of the Rehabilitation Act of 1973 and the Individuals with Disabilities Education Act), and the Olmstead Decision made by the Supreme Court. When we know our rights, we are better able to advocate for ourselves in everyday situations. This knowledge also helps us advocate to expand our rights.
How a Bill Becomes a Law/ Advocating in Albany
Are you interested in having input in spaces where laws are made? Are you curious about how laws are made? If so, this workshop is for you. In our workshop, we will discuss the law-making process, why it is important to advocate in government spaces, and how to talk to the people who make the laws. This workshop will include information specific to NY state and will include opportunities for individuals to practice speaking up to advocate for the protection of their rights. This workshop is for self-advocates (those with a disability) as well as family caregivers.
Preparing for Legislative Session: Advocacy Starts Now
Successful advocacy starts long before the state legislative session begins. Join us to learn how to prepare in the fall months by building relationships with legislators, policymakers, self-advocates, families, and coalition partners, while developing a proactive advocacy strategy for your state. We'll share tools, resources, and practical tips to help you elevate inclusive postsecondary education and create momentum before legislative priorities are set.
IPSE 101: Growing Inclusive Postsecondary Education in New York State
What is Inclusive Postsecondary Education (IPSE)? Learn about inclusive college programs that serve students with intellectual disability, how they work, and opportunities that are available in New York State. We will leave plenty of time for Q&A.
Food Truck Fest SANYS Fundraiser
Proceeds benefit the Self Advocacy Association of New York State — supporting self-advocates across our community. Supporting self-advocacy for all ages in the disability community.
Webinar on New Medicaid Work Requirements
The American Association of People with Disabilities (AAPD) is hosting a policy webinar on July 14 from 2 - 3:30 PM ET about the new Medicaid work requirements and what they may mean for disabled people.
Office for People With Developmental Disabilities Future Planning Forums
OPWDD FUTURE PLANNING FORUMS
We are excited to kickoff our 2026 OPWDD Future Planning Forums.
This summer, OPWDD will be holding forums across New York State to share updates about our work and hear from you. This year is especially exciting as it will officially kick off our work on our next five-year OPWDD Strategic Plan.
The following forums have been scheduled:
Advocacy Through Authenticity: Culture, Confidence & Connection
Advocacy Through Authenticity: Culture, Confidence & Connection
June 30 | 10:00 AM – 11:30 AM
Advocacy is most powerful when it reflects who you are; your culture, values, experiences, and strengths.
In a time when families are navigating increasingly complex systems, finding your voice and using it effectively has never been more important. Together, we'll explore practical strategies for advocating with confidence, navigating barriers, building stronger partnerships with providers, and using your family's lived experience as a source of strength.
CE Credits Available for FPAs & YPAs
The flyer is attached with additional details.
Register Here:
https://us02web.zoom.us/meeting/register/0SbxuGNESbmYyQGvNV0jMg#/registration
Self-Advocate Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Family Caregiver Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Meeting and Screening of Unseen
Greater Mohawk Valley
Thursday, June 18, 2026
10 a.m. to 1 p.m.
Delta by Marriot, 200 Genesee Street, Utica, NY 13502
Screening of Unseen at 11 a.m.
Self-Advocate Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Family Caregiver Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Virtual Learning Session: IDD Ombudsman (IDDO)
Virtual Learning Session: ABLE Accounts
Tuesday, June 2, 2026, at 12 p.m. OR 6 p.m.
The NY ABLE Program helps New Yorkers with disabilities save money for everyday life expenses without losing benefits like SSI or Medicaid. Eligible individuals can use an ABLE account to pay for disability‑related costs such as housing, healthcare, transportation, education, and assistive technology. Presented by Jenna McClosky.
What You’ll Learn
What the NY ABLE Program is and who can use it.
How an ABLE account lets people save money without losing SSI or Medicaid.
What kinds of everyday disability‑related expenses ABLE savings can be used for.
How to open an account, add money, and use funds in simple ways.
Panel Discussion - Thinking Ahead: Aging, Care, and Support
Taconic
Thursday, June 11, 2026
10 a.m. to 2 p.m.
DoubleTree Hilton Poughkeepsie, 40 Civic Center Plaza, Poughkeepsie, NY 12601
Panel discussion at 12 p.m.- Thinking Ahead: Aging, Care, and Support
Screening of Unseen at 1 p.m.
Self-Advocate Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Family Caregiver Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Panel Discussion - Self Direction
Southern Tier
Wednesday, June 10, 2026
10 a.m. to 2 p.m.
DoubleTree by Hilton, 225 Water St, Binghamton, NY 13901
Panelist discussion on Self-Direction at 11 a.m.
Screening of Unseen at 1 p.m.
Family Caregiver Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Self Advocate Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Self Advocate Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Family Caregiver Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Family Caregiver Workshop - Understanding Disability Support in NY: Working Together for Change
Understanding Disability Support in NY: Working Together for Change
Find clarity, share experiences, and connect with others navigating New York’s disability support system. Learn how programs work, discover their history, and leave with a fresh idea inspired by someone in the room.
Throughout the month of June, The Disability Advocacy Training Network, a project of the Center on Disability and Inclusion (CDI) at Syracuse University, will be offering this workshop in a variety of locations throughout New York State, with virtual options for participation as well. Please register for the session that best fits your needs. Light refreshments will be served at in-person workshops. Note- other workshops will be offered in the future by the Disability Advocacy Training Network.
Virtual Learning Session: ABLE Accounts
Virtual Learning Session: ABLE Accounts
Tuesday, June 2, 2026, at 12 p.m. OR 6 p.m.
The NY ABLE Program helps New Yorkers with disabilities save money for everyday life expenses without losing benefits like SSI or Medicaid. Eligible individuals can use an ABLE account to pay for disability‑related costs such as housing, healthcare, transportation, education, and assistive technology. Presented by Jenna McClosky.
What You’ll Learn
What the NY ABLE Program is and who can use it.
How an ABLE account lets people save money without losing SSI or Medicaid.
What kinds of everyday disability‑related expenses ABLE savings can be used for.
How to open an account, add money, and use funds in simple ways.
Virtual Learning Session: Common Behavioral Presentations of Underlying Medical Conditions in People with IDD
Actions Speak Louder Than Words: Common Behavioral Presentations of Underlying Medical Conditions in People with IDD
Thursday, May 21, 2026, at 11 a.m.
Behavior is a form of communication. For people with intellectual and developmental disabilities (IDD), changes in behavior are often a way of expressing pain, discomfort, or emotional distress. In this session, we’ll look at how certain behaviors can be signs of underlying medical issues. Before starting medication or behavior plans, it’s important to first understand what the behavior may be trying to tell us. Using real-life case examples, this presentation will walk through 10 common behavior patterns that may point to treatable medical causes. Identifying and addressing these causes can make a meaningful difference in health, comfort, and overall quality of life.
Presenter: Dr. Craig Escudé is a board-certified Fellow of the American Academy of Family Physicians, the American Academy of Developmental Medicine, and the American Association on Intellectual and Developmental Disabilities. He is also the President of IntellectAbility. He has more than 20 years of clinical experience providing medical care for people with IDD and complex medical and mental health conditions serving as medical director of Hudspeth Regional Center in Mississippi for most of that time. While there, he founded DETECT, the Developmental Evaluation, Training, and Educational Consultative Team of Mississippi. He is the author of “Clinical Pearls in IDD Healthcare” and developer of the “Curriculum in IDD Healthcare,” an eLearning course used to train clinicians on the fundamentals of healthcare for people with IDD. He is also the host of the IDD Health Matters Podcast.
What You’ll Learn
• Why behavior should be seen as communication, not just a challenge
• Common behavior patterns that may signal pain or medical concerns
• How identifying underlying causes can improve health and wellness
• Why medical evaluation is a critical first step before treatment plans
Virtual Learning Session: Family Support Services
Virtual Learning Session: Family Support Services (FSS)
Tuesday, May 19, 2026, at 6 p.m.
Learn the basics of Family Support Services (FSS), an OPWDD funded program that helps families who are caring for a loved one with a developmental disability at home. This session explains what FSS covers, including respite and goods/services reimbursements, who qualifies, and how to apply. We’ll also briefly review the approval process and what to expect after submitting a request. Presented by Lyndsey Paulin, Home Services Director at Racker.
What You’ll Learn:
Understand what Family Support Services (FSS) are, how the program works, and who is eligible to apply.
Explore the types of support FSS can help pay for, including respite care, goods, and services that support a loved one with a developmental disability.
Review how much funding may be available each year, what reimbursement means, and important rules to know before spending money.
Learn how to apply for FSS funding, how requests are reviewed, and what options families have if a request is denied.
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